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Tuesday, June 19, 2012

Local Businesswoman Takes Beauty On The Road (Literally)

Have no fear South Sounders, the Beauty Mobile is here!

At the driver's wheel? None other than Erin Rose, owner of Skin Care by Erin Rose, a terrific local skincare and waxing business.

Skin Care by Erin Rose offers facials, skin, and waxing treatments that refine your look and just make you glow inside and out. Besides Erin Rose's longtime experience in the biz, she has great energy, superb customer service, a wide array of services, a comfy spa environment, and competitive prices.
Don't let those fuzzy wuzzy brows take over your face! Dull skin bringing you down? Look no further. Help is here!
Please click HERE to see a menu of treatments and prices.

Intrigued? Thought you'd be. Concerned though that it's hard to squeeze in a brow wax or a facial with a busy schedule? Looking for a fun and creative party idea for a shower or a girl's night out? Take advantage of Skin Care by Erin Rose's brand spankin' new mobile service! She will come to YOU. Home, office, party site--it's just one phone call away, my friends. Here's how it works:

Get together a group of 5-12 people at your home OR work place and she will come to YOU and provide waxing and/or facial services. Please click HERE for the details and menu for mobile beauty or pick up the phone and call 206-349-3790.
Yes, it's that easy.

And if you need a gift for friend or relative, gift certificates are available, too. Perfect for birthdays, girl's outings, grads, and holidays. And don't forget the dudes too! Check out the menu by clicking above to see the options for men.

Here's our gal, Erin Rose!

Thursday, June 14, 2012

Where To From Here? Lyme Desperation

It's funny how a major explosion in your world can make a moment of such clarity, everything slows down, and your senses deepen.  I could hear songbirds, feel the grass under my knees, smell the peonies and honeysuckle, and taste their sweetness along with the moisture in the air.  Every flower, shrub and tree came sharply into view, the explosion too deep for tears to blur my vision.  I willed myself to keep breathing, there on my knees, in the middle of our blossoming garden.  Keep breathing...and ask for help, my hands gripping the Mama's hair.

It seems the government wants to kill my daughter.  The news slipped in quietly, a postcard in the mail with small writing.  I almost threw it out as junk mail...then I looked closer.  Turns out to be a love-note from Medicaid...actually...more like a break-up note.
"As of July 1st, 2012, Medicaid will no longer pay for prescriptions from doctors who are not contracted with Medicaid."

"Don't worry," said her doctor, "I'm investigating what I can do," he told us, on our last visit, in May.  So, we didn't worry...we thought he would do whatever he needed for his patients who are on Disability and Medicaid.  Yesterday, he wrote an email to my daughter, telling her he would not be signing a contract with Medicaid, and she needed to find another doctor, to continue ALL her many, many meds.  You see, Medicaid could sue him...for not following the 2006 Lyme Guidelines, linked from the CDC site.  Dr. Jemsek was sued by Medicaid for $1.4M...lost his practice, though he has started again in a different state, a true Lyme Warrior, willing to fight for his patients, at his own personal cost. 

All this is, sadly, the business of medicine stopping the art of healing.  I don’t quite understand my daughter’s doctor’s fear of being sued, when he has explained, to the satisfaction of the Board of Health, his treatment of tick-borne illnesses.  It took a prompt from my daughter for him to contact Medicaid, one month after her visit, just over two weeks to go until the cut-off.  His promise to stay with my daughter, all the way through her illness, is null and void.  Again, all misery leads back to the outdated 2006 Lyme Guidelines.  The insurance buck stops there, though we are light-years ahead of those guidelines now.

These 2006 guidelines are what we've worked so hard to try and get struck from being endorsed by the CDC site.  In the years since they were put there, evidence has piled sky-high against their assertion that there is no such thing as chronic Lyme, that patients are cured with 28 days of IV antibiotics.  That has been proven wrong, with the continued infections killing many patients, and taking away the quality of life for those surviving.  To put this another way, imagine an AIDS patient, without treatment and facing prejudice every day; quadruple the number of AIDS patients in America today, and there you have Lyme.  Their guideline given to Infectious Disease doctors, for chronic patients, with multiple infections, is to ignore them...DO NOTHING.  That's their treatment plan for my daughter, and we've seen what doing nothing does.  Every time she goes off antibiotics, she slides backwards at an alarming rate...put her back on, and there she is, her mind brilliant. 

Why are those Lyme Guidelines allowed to stay on the CDC site, when the same site has, almost daily, posted new studies and peer-reviewed articles that ring alarm bells about Lyme as an "emerging" disease, along with the many deadly co-infections (my daughter has two, babesia and bartonella, along with Lyme) that the IDSA (Infectious Disease Society of America) panel now says they didn't know about, complicating treatment, why do they stay up?  Why aren't they posting guidelines from an ILADS (International Lyme and Associated Diseases Society) panel?  ILADS has the new research and peer-reviewed articles, is training as many doctors as will sign-up, to get on top of this mounting plague...why are they not given space on the website of the Center for Disease Control, when they so obviously know more, and DO more for the suffering patients??  They call for more doctors to train and this, let me tell you, is the field for those determined to save the world.  Come and join the heroes who are working against a silent plague, brought to you by ticks...ticks on deer, dogs, cats, mice, rats, humans, squirrels, lizards, snakes, tortoises...and birds.
Engorged tick attached to a bird

Yes, birds...the true Trans-World Airlines for these little arachnids.  Follow every migratory route, and you will see the "airborne" spread of Lyme.  That a panel of fourteen doctors can stop treatment for thousands of desperately-ill...and I do mean desperate...patients, is egregious, especially while they continue to make money on the lie, that chronic infections don't exist, not there, not listening...lalalalalalala!

My daughter was lucky (?) enough, after suffering for eight years (that's 2,912 days of agonizing pain, malarial-like sweats and chills, paralysis...and three more pages of symptoms) to find a Lyme-literate physician who, seeing her in a wheelchair and completely compromised, took her on as a patient, pro bono.  He found Medicaid just too difficult to deal with.  My daughter, on Disability that pays her less than $700/month, was blessed with this big-hearted, big-money doctor.  With him, and long-term antibiotics, she was able to get out of a wheelchair!  In those previous eight years, bacteria grew in her body to the point where antibiotic treatment is maintenance, and not a cure.  But she'll take maintenance, thank you, while researchers try for more.

Can you imagine, you're below poverty level and you find a doctor who will treat you, for free.  You have the comfort of a support system and medications, and then Medicaid decides to find their missing money, in your treatment.  Never mind where money bleeds out in Medicaid fraud, and on salaries for those comfortable in their positions, on grants and misusing funds.  No, go directly for the patient.  What rights do the poor and the sick have in this country?  Understand me here, the number one cause of death, in Lyme patients right now, is suicide.  They give up hope. 

Number two…is stopping treatment. 

They have been abused by the system that feels "comfortable" (a term doctors like to use) in denying their illness, even when they sit in front of them in wheelchairs, having seizures, irregular EEG's, and painful spasms, then forgotten until it's time to be abused again, by a government that swore to take care of the disabled and disadvantaged.  Why do they consistently look for their missing money, in pockets that are less than empty?  The pockets have worn away.  Here, in our fourteenth year of fighting this damn disease, we're worn.  As my daughter said last night, "We're up a creek, without a paddle."  I would carve the paddles, if I could find the doctors willing to be educated, if I could make someone understand that, to do nothing, is to allow a plague that will drain Disability and Medicaid Funds dry. 

Now we are left, because we were told not to worry, with just over two weeks to find a doctor/doctors who will take over the many prescriptions for the many symptoms, and will accept Medicaid.  On July 1st, barring a miracle, my beloved daughter's Lyme treatment ends.  God forgive you, powers that be, at Medicaid...because I can't.  The birds still sing, and flowers bloom, but our world is shattered, our belief in compassion flying through the air, just bloody bits, splayed with this news.

Saturday, June 9, 2012

The Diamond Jubilee

As a child of an officer in the Royal Air Force, I bounced around the eastern hemisphere for the first decade, following my father’s postings.  A special paper had to be drawn up, when I was born in Cyprus, during England’s occupation, proving I was “born on British soil,” making me a Brit, because the hospital was on an R.A.F. base.  Truth be told, though I felt the roots of family and history, England could sometimes feel as foreign as Southeast Asia.  Immigrating to Canada, now that required a major shifting of gears, for my second decade and then some, eh!  Still I stayed a Brit.

What, or in this case, who, was my constant?

My Queen is my country.

Everywhere I went in the world, there was Her Majesty, Queen Elizabeth II.  I loved to see my father in his dress whites, ready to pilot the helicopter that would sometimes carry the Queen, Prince Philip, or Lord Mountbatten, when we were stationed in Malaysia and Singapore.  Even in Canada, there she was, my constant.  Dad was a civilian pilot by then, off in the bush nine months of the year.  Still she reigned over us and, as more feminist leanings arose in my teens, I was glad to see at least one woman with the power to bow my father’s head!

In a world of men and power, my Queen humbly gave her life in service, and has not stopped now, for sixty years.  In her lifetime of eighty-five years, the world hurled itself into the future and, though she never trained as a pilot, Her Majesty has flown the lead for her people.  I do not know of a dedication deeper than her’s, and I’m so happy to join in with others around the world, celebrating our Queen’s good heart and conscience.  She shows no signs of retiring, or even slowing down.  When folks begin discussions of her possible abdication, I smile, knowing she stated simply, that she gave us her life, whether it be short or long.

I’m not here for a discussion on monarchy, or to bite the hand of whoever signed the paper allowing me to live, work and pay taxes in America, after falling in love and marrying an American.  I’ve lived here longer than all other countries combined, exploring and loving this land.  Still, I’ve stayed a Brit.

My Queen is my country.  

Official Diamond Jubilee photo of Her Majesty, Queen Elizabeth II